AWARENESS EVENTS

Promoting Community Awareness

On Saturday June 24th, New Greater Bethel Ministries held its
annual community health fair in Queens, New York City. As a
member of the health committee of the Queens County section
of the National Council of Negro Women (NCNW), Kaamilah Gilyard
was asked to speak on the topic of Lupus to a crowd of approximately
100 southeast Queens residents that attended the health fair.
It was about 90 degrees outside and she was not feeling very well
due to the sun and the heat, but that did not stop her.

Kaamilah was determined to at least get the conversation started
within the community. The presentation went well despite the fact
that it was supposed to be inside with a powerpoint supplement
and a Q&A period. But it turned out well because LADA pamphlets
and FAQ sheets were passed out and available at the NCNW table
and attendees were able to come up to the table after the presentation
and ask their questions, obtain business cards and provide feedback.
The general consensus was that the presentation was successful as
far as informing the community about an issue that directly affects
them, and giving attendees the tools they need to move forward as
an informed and empowered community. The end result is that we
have been invited back for next year and also two other healthcare
agencies would like to collaborate with Kaamilah on lupus awareness
projects in the near future. We thank Kaamilah for her volunteerism,
advocacy, passion and perseverance despite the weather!


Lupus Community Advocate Extraordinaire Kaamilah Gilyard
(on right) promoting critical awareness 
in her local community


Celebrate Lupus Awareness
 

You can always promote Lupus Awareness 
year round by volunteering at a community event!
 

MAY IS LUPUS AWARENESS MONTH
On Wednesday, May 3, 2017 the 6 Lupus Agencies of
New York State were guests in the NYS Senate 
and Assembly as both houses recognized May
as Lupus Awareness Month. Senator Joseph Griffo
and Assemblyman Fred W. Thiele, Jr. were the 
Legislative Sponsors of the event.


Senators Diane Savino and Joseph Griffo with
LANYS Advocates inside the Senate Chamber.


Assemblyman Fred W. Thiele, Jr. with LANYS Advocates
in the NYS Assembly Chamber.


Assemblyman Anthony Brindisi with Lupus 
Advocates in the Assembly Gallery.


Senator David Valesky with LANYS Advocates 
outside the NYS Senate Chamber.

Lupus News Today Article

2017 Senate Video

Assembly Video

2017 Joint Resolution

Utica OD Article





PATIENT VOICE IS RELEVANT

The patient voice has become more relevant than ever before 
with initiatives like Patient-Focused Drug Development, 
Precision Medicine, the House 21st Century Cures, and the Senate 
Healthier Americans. LADA has been at the forefront in 
encouraging patient-inclusion as an equal stakeholder in all 
access to healthcare and research efforts. The patient voice 
is now welcome and necessary, and we are participating 
in as many forums as possible to ensure one is present and heard.

LADA Support Letter for 21st Century Cures Act
 
 

Lupus Agencies of New York State 
exhibit at the NYS Fair for the 24th Year!

For more photos Click Here


For Video

Click Here


LUPUS AGENCIES OF NY STATE AWARENESS
BOOTH AT THE NY STATE FAIR





  
For the 24th consecutive year volunteers from the
Lupus Foundation of Mid and Northern New York manned
The Lupus Agencies of New York State Booth at the
NY State Fair during late August. The booth gives
us the opportunity to promote lupus awareness
and disseminate information to a much larger
population within the state. 







Lupus Agencies of NYS Volunteers Kathleen Arntsen,
Jill Fassell and Barry Golden.





Volunteer David Arntsen replenishing the materials.


Volunteers Floyd, Sandy Loveland, Jackie Taylor,
Kathleen Arntsen and Tom Taylor.



A monarch butterfly at the new butterfly display at the fair.