AWARENESS EVENTS
 
ACR Annual Meeting Exhibit

For the 2nd year in a row, Lupus and Allied Diseases
Association sponsored the Lupus Exhibit at the ACR
Annual Scientific Meeting. The event took place from
November 4th to the 7th in San Diego, CA. The Lupus
Foundation of America, Lupus Research Alliance and
Lupus LA also provided materials for the booth.


LADA volunteers Kaamilah Gilyard, Kathleen Arntsen, David
Arntsen and Amanda Greene at the ACR Lupus Exhibit.



LFA Volunteers Lyna Merzoug and Alisha Ladenburg in front
of the 1,000 Butterflies backdrop at the ACR Lupus Exhibit.



LADA Volunteer Amanda Greene with LFA Volunteers
Lauren Metelski and Patricia Davidson at the Lupus Booth.



NIAMS Coalition Meeting

Lupus and Allied Diseases Association participated the
Bi-Annual National Institute of Arthritis and Musculoskeletal
and Skin (NIAMS) Diseases Coalition Meeting at the NIH
Campus in Bethesda on October 17, 2017.


Pictured above, (left to right) are LRA Representatives Meghann
Vaughn and Diane Gross, NIAMS Director Dr. Stephen Katz, and
LADA Representatives Kathleen Arntsen and Jeffrey Anders. 



LADA President & CEO Kathleen Arntsen Presented a poster
highlighting our organization's programs at the NIAMS meeting.


LFA Evening of Hope Gala

On October 11, 2017 LADA supported the LFA's Evening of Hope NYC
Gala in order to celebrate the work of our New York patient advocates.



LADA Advocates Lisabeth Iglesias (far left), Kathleen Arntsen 

(2nd from right), and Kaamilah Gilyard (far right) with LFA 

CEO Sandra Raymond (2nd from left) at the Gala


Gala Honorees Dr. Michelle Glickman (far left) and Dr. Richard
Glickman (2nd from right) with LADA Advocates at the Gala



New York State Patient Advocates Peter Morley, Kaamilah
Gilyard, Anne Zablatowicz, and Lisabeth Iglesias at the event



Promoting Community Awareness

On Saturday June 24th, New Greater Bethel Ministries held its
annual community health fair in Queens, New York City. As a
member of the health committee of the Queens County section
of the National Council of Negro Women (NCNW), Kaamilah Gilyard
was asked to speak on the topic of Lupus to a crowd of approximately
100 southeast Queens residents that attended the health fair.
It was about 90 degrees outside and she was not feeling very well
due to the sun and the heat, but that did not stop her.

Kaamilah was determined to at least get the conversation started
within the community. The presentation went well despite the fact
that it was supposed to be inside with a powerpoint supplement
and a Q&A period. We thank Kaamilah for her volunteerism,
advocacy, passion and perseverance despite the weather!


Lupus Community Advocate Extraordinaire Kaamilah Gilyard
(on rig
ht) promoting critical awareness in her local community


LADA Exhibits at the BIO International Meeting

For the 3rd Year in a row LADA was invited to have an exhibit
in the
Patient Advocacy Pavilion at the BIO International Scientific
Meeting.
The event took place June
19-23, 2017 in San Diego, CA. 


LADA Board Secretary David Arntsen and President & CEO Kathleen
Arntsen presenting a poster on our research initiatives at the BIO Meeting.


Celebrate Lupus Awareness
 
You can always promote Lupus Awareness 
year round by volunteering at a community event!
 

MAY IS LUPUS AWARENESS MONTH
On Wednesday, May 3, 2017 the 6 Lupus Agencies of
New York State were guests in the NYS Senate 
and Assembly as both houses recognized May
as Lupus Awareness Month. Senator Joseph Griffo
and Assemblyman Fred W. Thiele, Jr. were the 
Legislative Sponsors of the event.


Senators Diane Savino and Joseph Griffo with
LANYS Advocates inside the Senate Chamber.


Assemblyman Fred W. Thiele, Jr. with LANYS Advocates
in the NYS Assembly Chamber.


Assemblyman Anthony Brindisi with Lupus 
Advocates in the Assembly Gallery.


Senator David Valesky with LANYS Advocates 
outside the NYS Senate Chamber.

Lupus News Today Article

2017 Senate Video

Assembly Video

2017 Joint Resolution

Utica OD Article





 
 

Lupus Agencies of New York State 
exhibit at the NYS Fair for the 24th Year!




LUPUS AGENCIES OF NY STATE AWARENESS
BOOTH AT THE NY STATE FAIR



  
For the 24th consecutive year volunteers from the
Lupus Foundation of Mid and Northern New York manned
The Lupus Agencies of New York State Booth at the
NY State Fair during late August. The booth gives
us the opportunity to promote lupus awareness
and disseminate information to a much larger
population within the state. 










Volunteer David Arntsen replenishing the materials


Volunteers Floyd, Sandy Loveland, Jackie Taylor,
Kathleen Arntsen and Tom Taylor



A monarch butterfly at the butterfly display at the fair