Welcome
For the past 40 years, the Lupus and Allied Diseases
Association, Inc., formerly Lupus Foundation of Mid and
Northern New York has been providing education, support,
and outreach services for people with lupus and allied
diseases and conditions of unmet need as well as
for their loved ones, and promoting programs of
public awareness, advocacy & research.
For the Fiscal Year ending on September 30, 2017
our organization's administrative costs were
less than 1.0% leaving more than 99.0% of every dollar raised going directly to our Program Services!
It is our hope that if you have lupus or another allied disease
or know someone who has lupus or another allied disease
that you will use this website as a tool to take control and learn
to live with your condition. We realize that these diseases do not
just affect an individual; they impact the entire family. We are here
for you as you and your loved ones continue on your journey.
News & Events

GROUNDBREAKING LUPUS INITIATIVE
The Lupus and Allied Diseases Association, the Lupus
Foundation of America, and the Lupus Research Alliance
collaborated on a Lupus Patient-Focused Drug Development (PFDD) Initiative holding the Lupus: Patient Voices Meeting on September 25, 2017. This groundbreaking endeavor culminated in a day-long meeting that featured a series of facilitated panel and audience discussions designed to provide the Food and Drug Administration (FDA) and other stakeholders with perspectives from people with lupus.
The Lupus: Patient Voices Report, a comprehensive report composed as a result of the
externally-led Lupus Patient-Focused Drug Development (PFDD) Meeting and
pre-meeting survey, was released on March 6th. More than 2,100 people with lupus
and their representatives contributed information to this report, sharing insights on living with lupus and their experiences with treatments.
This report is a major
milestone for the lupus community and will be shared directly with the U.S. Food and
Drug Administration (FDA) to help advance treatments for lupus. The Lupus: Patient Voices Report and the
Lupus PFDD Meeting are the result of a collaboration by the three national lupus organizations and is a parallel effort to the U.S. Food and Drug Administration’s
(FDA) Patient-Focused Drug Development Initiative.
Please visit lupuspfdd.org for more information on the project.
Post-Report Launch Announcement
Post-Meeting Announcement
September 2017 Press Release
May 2017 Announcement
Lupus PFDD Press Release
MAY IS
LUPUS AWARENESS MONTH
Please
join us on Wednesday, May 23, 2018 as
LADA joins
with the other members of the Lupus
Agencies
of New York State for the 10th Annual Lupus
Awareness
Month Recognition in the State Capital. The groups have been coming to Albany each May for the past ten years to increase public awareness of Lupus and to garner support for education and research programs and access to healthcare issues.
Please
send an e-mail to Info@LADAinc.org for more information
or if interested in attending.
MAY 10TH
IS WORLD LUPUS DAY
Lupus and
Allied Diseases Association is honored to be a member of the World Lupus Federation participating in the 15th annual observance of World Lupus Day on May 10, 2018 along with 200 lupus groups from around the world.
A global
health problem, lupus affects people of all nationalities, races, ethnicities, genders and ages. While lupus knows no boundaries, knowing all you can about lupus can help control its impact.
Click here
for more information.
LUPUS IN THE MILITARY WEBINAR
Free: One-hour, CME-accredited webinar about Systemic Lupus Erythematosus (SLE), with particular attention paid to the issue of the disease's growing prevalence in the military veteran community on April 27 and May 18
Click Here to REGISTER
EDUCATION
SYMPOSIUM
We are
partnering with the Lupus Alliance of Upstate
New York (LAUNY) to sponsor Enhancing Lives by
Engaging,
Empowering and Elevating the Lupus
Community
Education Symposiums in Syracuse on May 12th
and Buffalo on June 30th.
Syracuse
Flyer Registration
Website
MARCH WAS AUTOIMMUNE AWARENESS MONTH
There are over 100 autoimmune conditions impacting 50 million Americans and yet these diseases remain elusive and usually require seeing multiple physicians over several years to reach a diagnosis.
Lupus and Allied Diseases Association (LADA) joined together with advocacy partners Global Healthy Living Foundation (GHLF), National Infusion Center Association (NICA), and U.S. Pain Foundation to promote awareness during the month of March.

Click on the link below for the entire publication Autoimmune Publication
ADVOCACY VICTORY
The Step Therapy Reform Bill was signed into law on
December 31, 2016 by Governor Andrew Cuomo. We thank the
nearly 80 patient advocacy and provider organizations, the NYS
Legislature, and the bill sponsors Senator Catharine Young and
Assemblyman Matthew Titone for their tremendous support
and efforts for nearly seven years. We applaud Governor Cuomo
for standing with us by providing strong safeguards that will
ensure proper access to treatments for patients when appropriate. Links to help with questions during the implementation of the law for insurers, consumers and providers are below.
December Press Release
FAQ Guidance for Health Insurers on Law
Q & A on Law
Physician Form Requesting Review
The 18th Annual Lupus Charity Golf Classic will be held on Thursday, August 23rd, 2018
at the Shenendoah Golf Course at
Turning Stone Resort in Verona, NY
Event Poster
Sponsor Packet
Golfer Packet
ANNUAL RESEARCH DONATION
Lupus Research Alliance Board Secretary Robert Ravitz
(center right) and President & CEO Kenneth Farber (right) receive our 2017 Annual Research Donation of $75,000 from Lupus and Allied Diseases Association President & CEO
Kathleen Arntsen and Board Secretary David Arntsen (left)
on October 23, 2017 at the Annual Scientific Meeting. We have now donated $391,000 to the Lupus Research Alliance in the past sixteen years and $564,000 overall to lupus research.
Lupus and Allied Diseases Association President & CEO Kathleen Arntsen (left) presents our 2018 Annual Research Donation of $100,000 to Lupus Foundation of America CEO Sandra Raymond (right) on March 14, 2018 in front of LADA's plaque on the LFA's donor wall. The grant is to fund pediatric lupus and mesenchymal stem cell research. We have now donated $125,000 to the LFA in the past two years for research.
OUTSTANDING EVENT
The 17th Annual Lupus Charity Golf Classic raised
over $90,000.00 on Thursday, August 24th, 2017
at the beautiful Shenendoah Golf Course at
Turning Stone Resort in Verona, NY where 96 golfers
and 30 volunteers participated in the patient-driven event.
2017 Golf Classic Cart Sponsor National Infusion Center Association and Global Healthy Living Foundation had the best team name "Weapons of Grass Destruction." Pictured above left to right are Brian Nyquist, Ryan Johnson, Steve Marmaras and Zach Manfredi.
MAY IS LUPUS AWARENESS MONTH
On Wednesday, May 3, 2017 the 6 Lupus Agencies of
New York State were guests in the NYS Senate
and Assembly as both houses recognized May
as Lupus Awareness Month. Senator Joseph Griffo
and Assemblyman Fred W. Thiele, Jr. were the
Legislative Sponsors of the event.
Senators Diane Savino and Joseph Griffo with
LANYS Advocates inside the Senate Chamber.
Assemblyman Fred W. Thiele, Jr. with LANYS Advocates in the NYS Assembly Chamber.
Lupus and Allied Diseases Association, Inc.
PO Box 170
Verona, NY 13478
Telephone 315-829-4272
Toll Free 1-866-258-7874 or 1-866-2-LUPUS-4
Fax 315-829-4272
e-mail LupusInnovators@aol.com
or Info@LADAinc.org
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