News and Events

BIO International Meeting



LADA Board Members David & Kathleen 
Arntsen
shared our clinical trial program information at a
poster session during the Pfizer tour at the BIO
International Meeting in San Diego, CA in June



Advocacy Champions Honored




Lupus Alliance of Upstate New York E.D. Judith Christian

presented Kathleen Arntsen with the new LEAN Forward
Award at their Illumination Lupus Event on May 20th. 
Kathleen was also the keynote speaker at the dinner.




Assemblywoman Crystal Peoples-Stokes was also 
honored with the LEAN Forward Award as a champion 
of lupus and healthcare issues in the state legislature.



Biosimilars Summit



Kathleen Arntsen participated as a panelist at the Biosimilars
Summit on April 6th sponsored by the Biologics Prescribers
Collaborative (BPC) and Alliance for Patient Access (AfPA).
The panel discussed state access issues and advocacy strategies.

  
BIO NJ Forum

BIO NJ held a workshop on "The Value of Medical Innovation:
The Patient's Voice" at Amicus Therapeutics on December 8th
in Cranbury, NJ featuring various healthcare stakeholders.

Link to Video Overview 


Kathleen Arntsen sharing her patient perspective on value 


LADA EXHIBITS AT ACR 2016

Lupus and Allied Diseases Association sponsored
the Lupus Exhibit at the ACR Scientific Meeting
November 12-15, 2016 in Washington, DC.
The Lupus Foundation of America and Lupus
Research Alliance shared the booth by also
exhibiting their materials. Kudos to LADA Board
Member David Arntsen for managing the booth
and thanks to all of the volunteers.


Volunteers Charlotta Norgaard from Lupus FFF,
and 
Kathleen Arntsen & David Arntsen from LADA


Advocates Carly Harrison & Tiffany Peterson from #LupusChat



LADA Volunteers Kaamilah Gilyard & David Arntsen



Lupus Exhibit Volunteers Diomaris Gonzalez
from LRA & David Arntsen from LADA


BIO International Meeting

President & CEO Kathleen Arntsen and Vice President Jackie Taylor
attended the BIO International Scientific Meeting in San Francisco
where LADA had an exhibit in the Patient Advocacy Pavilion. They also
participated in partnering meetings, attended educational forums, 
networking events, and Kathleen presented a patient perspective 
on a panel sponsored by Precision Health Economics 
discussing "The Future of Biosimilars" on June 8, 2016.


  
Kathleen Arntsen with fellow panelists: Geoffrey Eich, Amgen; Darius 
Lakdawalla, USC & PHE; Tomas Philipson, U of Chicago & PHE; Dana 
Goldman, USC & PHE discussing the impact  biosimilars' policy will 
have on patient value and access at the BIO Meeting.
 


BIOSIMILARS FORUM

On May 4th LADA President Kathleen Arntsen participated
in a panel discussion on NYS Legislation S6311 / A8648
an act in relation to the substitution of biological
products for prescribed products in the capital
complex in Albany. She stressed the importance of
the bill in promoting patient safety and collaboration
among all member's of the health care team. After the
forum she met with Senator Kemp Hannon,
the Senate Bill Sponsor to discuss the bill.


Kathleen's Op-Ed



Kathleen Arntsen at the Discovering Cures Forum




Kathleen, Senator Kemp Hannon and Jackie Taylor




Speakers Kathleen Arntsen, Julie Hart,
Steve Marmaras & Dr. Rylan Hanks




Assemblyman Matthew Titone with advocates.

 

Contact Us:
Lupus and Allied Diseases Association, Inc.
PO Box 170
Verona, NY  13478
Telephone 315-829-4272
Toll Free Phone 1-866-258-7874 or 1-866-2-LUPUS-4
Fax 315-829-4272
e-mail
LupusInnovators@aol.com