Our Programs


Lupus and Allied Diseases Association, Inc. 
is dedicated to improving the quality of life for lupus and allied disease patients and their loved ones by providing public education programs, and promoting awareness, advocacy and research initiatives. 

We understand the isolation and fear patients often feel when they are first diagnosed with any condition.  We also recognize the impact disease can have on other family members, loved ones, and caregivers.  Our public education and advocacy programs are designed to empower patients to actively participate in their own health care to hopefully improve disease outcome and enhance their quality of life. 

We are also committed to increasing community awareness and program revenues by focusing public attention on lupus and other diseases of unmet need.   We realize that early diagnosis and treatment are vital components in reducing the physical and economic impact of chronic disease.  Our organization strongly supports increased research funding that will enable scientists to identify causes, develop faster diagnostic measures, safer, more effective treatments, and ultimately, discover cures.             

All of us at the Lupus and Allied Diseases Association, Inc. are proud to support The Lupus Research Alliance and have donated $316,000.00 to the LRA in the past 15 years.  The LRA has made tremendous strides in the lupus and autoimmune research community with many of their initial grants now receiving NIH funding, and we are extremely proud of our support of the LRA, it has become our beacon of hope, brightly shining in the stormy seas of lupus and autoimmunity.

Lupus and Allied Diseases Association, Inc. provides representation regarding important lupus and allied disease-related issues at state and national advocacy events.  Our participation in these public policy forums puts a face on these diseases and provides a voice while attempting to make a positive difference in the lives of others.

Our services include:

Education & Awareness  

  

 

Advocacy & Research
                              
  • Participation in state and federal public policy issue events

  • Advocacy for public policies to increase federal
    program funding

  • Advocacy for public policies to improve patient access issues  

  • Advocacy for better policies for government-funded assistance programs 

                              

  • Clinical trial information and participation opportunities

  • Current research information

  • Representation at the LRA Annual Scientific Meeting


*Special thanks to Team LUPUS participants for developing our patient empowerment resource materials:  Kathleen & David Arntsen, Sandi Frear from Lupus and Allied Diseases Association and Honi Kurzeja & Judith Anderson from Lupus Alliance of Upstate NY.

 



Contact Us:
Lupus and Allied Diseases Association, Inc.
PO Box 170
Verona, NY  13478
Telephone 315-829-4272
Toll Free Phone 1-866-258-7874 or 1-866-2-LUPUS-4
Fax 315-829-4272
e-mail
LupusInnovators@aol.com